This is the first chance I've had to be online for a few days now! - just had a rough few days. after behaving so well on thursday they really played up on friday. i ended up taking them for a 2 hour walk in the afternoon to keep them quiet, and then driving into town (from manurewa) to pick up my DH as the car ride kept them quiet. The paed wanted to try lowering the dosage of losec, so we dropped it from 10mg to 7.5mg on saturday and by saturday afternoon we knew that for Jessica it was way too low!!

So she's been spilling acid (man it stinks! even more than soya!) and been so unhappy and crying that it's been so hard to get her settled. Even last night - she was fine for the first half of the night, but then really unsettled for the rest.
Claire's been okay at the lower dosage, but still had a bad patch yesterday afternoon from 4 till 6 and is doing the same today. We put Jessica straight back up onto 10mg this morning, but we've kept Claire at the 7.5mg. So I'll ring the Paed again tomorrow morning and talk to him about where to next. I will definitely keep Jessica up, and may even increase this if needed - but will give it another week for her poor osophogus (sp??) to recover. I think we'll try Claire at the lower dose for another few days and see how we go. But DH will HAVE to be home from work by 4:30 every day this week!! 2 screaming, unsettled, refluxy babies is one too many!!

Poor Jessica is now crying every time I put her on my shoulder to burp her after a feed, cause she knows it's going to hurt.

breaks my heart that there's nothing more I can do to help ...

The Paed has sent off for the number for prescription soya from whanganui, so we'll get that plus a prescription for the soya this week sometime.

Jessica is soooo much more settled on this. I asked the Paed about soya versus Pepti jn or neocate, and he says that he's happy for her to stay on soya as it seems to be working. He also said that there's no reasearch showing issues of the phyto-estrogens affecting long term use of soya. so that was reasurring.
Thanks for all your ideas and support ladies!! It really helps keep me going.

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Me, DH and twin DD's - 4.5 years old already!
DD1: Undiagnosed metabolic disorder, reflux, food intolerances, asthma
DD2: Mild autism, food intolerances, reflux.
