I believe that diet has gotten us so far. And so has Losec. If she misses a dose then we have all hell break loose as the stomach acid which is then made washes back up into her oesophagus. If she had surgery it wouldn't be able to wash back up into her oesophagus, which make lots of sense to me, not too sure why you don't get that part of the equation? I have never heard of Losec causing the body to produce more stomach acid - I thought it was a protein pump inhibitor and thus stopped the production of stomach acid but I could be wrong.

All very well in theory like I said previously, but living the life is a bit different and anything to help is welcome.

Katey and Elise are very alike and I think it is most likely both. Structural and diet. I think if Katey has the surgery she will still be on the restricted diet she just won't need the losec any more.

Interesting what you say about Losec, but realistically for us the only way to take the losec away is finding a way to stop the acid washing up, and at this time and that would be surgery, it seems that maturity is not enough. Our kids with out Losec is just miserable for them, they can't sleep, can't concentrate and then end up so uncomfortable they don't even want to eat.

Interestingly enough Elise has always looked good health wise she is not skinny and pale so it would seem that the food that is getting in is doing something right. I think I remember Viv saying Katey was 14kg so the same there too I think.

It will be very interesting to see what the test starship show!!!!!
Claire

Thanks for the very interesting posts girls.

This is a pain in the ass (I hope I can say that here!) isn’t it. Meaning of course, very frustrating. (Is it just frustrating for Mums, or is it the same for your husbands/partners? I seem to be doing the worrying for both of us. Hubby's interested, but (seems) only to a certain extent! Probably just a male thing).

It seems so hard getting to the bottom of the problem, and when you finally get some answers, it seems that often there are multiple issues and therefore no easy fixes.

I do think that there are many GP's (and by the sounds of it, paeds as well) with very limited knowledge on reflux/reflux disease and the possible reasons for it.

I have also found everything about reflux disease from the internet and from this forum. I also 'diagnosed' Jacob with silent acid reflux (based on internet info), then went to a paed when he was 18 months & had it confirmed. Regrettably though, this was after many months of not doing anything - thinking it was a routine problem, thinking it was something to do with him falling off our bed & landing on his head (this happened at 1 year - then soon after he began waking up upset touching his neck - but GP doubted he had hurt his neck - I was worried that he had hurt his neck for months, then I began searching on the net for other possibilities). But basically I ignored my instincts for too long.
And looking back at how he was as a baby, it is highly likely that he had reflux then too, possibly at birth. But prior to him waking up upset and touching his neck, we just thought all his sleeping problems and crying were to do with routine and my poor milk supply (which is another issue, but (now I am pretty sure) was related to the reflux).

So, when you are pregnant & breastfeeding, are you supposed to avoid certain food groups e.g. dairy? Or is that only the case if you have a family history of allergy/intolerance to that food? I do remember eating a lot of icecream slices while pregnant, but can’t see how that is related to Jacob’s reflux (I don’t think he has a problem with dairy – the only skin condition he has is Keratosis Pilaris, which he inherited from me).

I would LOVE to see a programme about reflux disease (especially focusing on children), & the link with allergies & intolerances. Or just a programme about the (seemingly) increase in food allergies/intolerances would be great. I don't think there is much public awareness out there of this. Well, in my experience, certainly not of reflux disease.

Sorry I have gone off the topic yet again!

It has been very helpful hearing all your stories.

P.S. I agree that you just have to do what you as a Mum/Dad think is best for your child – you as parents know your child better than anyone else. Half my problem though is that I am very indecisive!