Finally back and operating better today - sick hubby last week and sick myself this week fun and games!

Thomas is just ticking along. No better, no worse, occasionally gives us a couple of really good days and you start to wonder if it's all in your head and then it all turns to custard again and you know it's not!

Scope is booked for the 15th so I guess we'll find out after that where we're at. In the meantime it's one foot in front of the other trying to survive - and keep him surviving, don't think you can call it thriving when he has no stamina or reserves. Despite a nap and a tube feed yesterday he lost the plot from exhaustion during his older brother's music recital and it was only 7:30pm - he is over 5!

And just when we thought the evil debris of reflux might eventually leave us alone - Nicholas' terrible eating has lead us to the point where the paed has referred us back to the surgeon for a tube for Nicholas. So loads of fun on the horizon round here! Thank heavens William recovered from his reflux surgery well, eats and is growing like a weed!

Hope things are improving for Flynn.

HI Wuz

Thanks for those links. I ordered the cham rad x20 as stronger the better I reakon. Flynns sleeping has gone down hill again so Im hoping this might help. Have spoke to paed re: losec dose and we going to try and give him a second dose of 10mg tonight and see if it upsets his tummy. And if not then carry him on 20m and see if it will help with the sleep. I quite doubt it will as it didnt last time he was on that dose. I cant wait to try the cham rad out and the digestodoron and see if it helps aswell.

Eleanor I cant believe what your poor kids are going through. They must be very strong boys to have coped with so much. I hope you get some answers soon.

Is he constipated Wizz? THat will be disrupting his sleep, Hopefully the digestodoron helps with that.

OMG wuz...they arrived yesterday by lunch time which was super quick. I gave Flynn his first dose of both. With in and hour and a half he did a poo and then he went to sleep from 15.30 to 17.30 with only needing resettling twice...this is the longest he has ever slept during the day and it was in his cot. I then gave him another dose and he went back to sleep at 18.30 waking for feeds or the dummy and then finally waking at 5.50am. Im hoping its not a coincidence lol. And he hasnt been reacting to the extra 10mg of losec Ive been giving him. I hope this isnt just a passing phase. I wish I had of tried the cham rad x20 sooner and the digestodoron. So thanks heaps for the suggestion.

Well, whatever it is, that is GREAT!!!!!! Hope it keeps up.

Great news!

How's it going wizz?

HI Wuz

He is doing great during the day and will now sleep in his cot for atleast 1hr-2hrs. I sometimes have to resettle but usually just by putting the dummy in his mouth. Nights still arnt that great. Not getting him into bed untill around 9pm because he just keeps on waking up. And is still waking around 4am every 20 mins or so with windy tummy. Not screaming the house down though just squirming and I have to get up with him at that point and just walk around with him. Its strange because as soon as I stand and have him upright his body relaxes and he calms right down. But laying down with him starts it back up again. Im not sure if its wind or reflux pain as he never seems to bring any wind up. Its a huge improvement and makes my life so much easier during the day. Haveing my hands free Im able to keep up with most of the house work now and spend some over due time with cassie.

Wizz that is great, it is all positive and moving forward. I would say the 4am wake is reflux related. I can't remember, is he FF or BF? If FF, have you tried neocate? I just wonder cos a friends girl was a happy bubba but used to wake and writhe around at around 4am every morning. She had many allergies and they eventually got her onto neocate (plus some stuff from a naturopath) and over time that stopped. The naturopath said it was intolerance/allergy related as the ?liver is very active that time of morning hence her being uncomfortable then. Just a thought.

You're at 5.5 months now, I reckon in another month things will be much improved :)At 6 months we honestly felt like we had a different baby.

I'm with Wuzz on this one - the fact that he squirms lying down and relaxes upright screams reflux to me.

So can reflux cause tummy pain that also makes them pull there legs up as that is the only thing making me lean towards wind. I also agree that it sounds like reflux with once being upright he calms right down.

Wuz he has been on neocate since he was 12 weeks. Prior to that he woke every 15mins so has really helped. How old is ypur baby now wuz? I cant wait for solids Im hoping it will solve all our problems.

Yep reflux can make them contort in all sorts of ways trying to relieve the pain they are in, poor little things.

DD2 is 8 months. We started solids at 5.5months. Started really really slowly, just pear for 2 weeks, then carrot for a week, then pumpkin for a week (only small amount, maybe 2tsp), then orange kumara, then gold kumara, then meat... DD2 is a real gagger, DD1 was having heaps of finger food by now but DD2 has a really strong gag reflex. She is getting heaps better though and eats little bits of meat, salmon, cheese etc.

Cassie who is now 2yr we started solids at 5.5mnths ans she had a really strong gag reflex aswell. She use to do big powerchucks while feeding and make a huge mess. She did this right up untill she was around 15mnths and now she seems to only do it when she doesnt like something. Flynn has shocking gag reflex also. He cant take a 3mnth old dummy as just gags and chokes on it so he a tiny new born one. I hoping he will ok with his solids. With cassie we just made really runny and smooth when she first started out. I guess two more weeks and I can start giving him a little solids per day. When is the best time of day to offer them as I have forgotten.

Best time of the day is whenever they are freshest!
Also not just before going to bed if dealing with reflux or allergies because you want them up in case they react to anything.

Have fun with the food adventure

Interesting about the gag reflex. DD2 would gag on dummies too. She is on thicker textures now and can eat little bits of mince. Has actually been pretty good progress over the last month looking back.

Flynn just seems to be getting better and better. He slept through last night not needing his 2.30am feed. I had to get up a few times but only to put the dummy in his mouth and he didnt do his usual wake up at 4am with tummy problems. MAY IT LAST!

Blardy fantastic wizz. OMG you must be feeling sooo stoked!

How are you getting on wizz?

Actually Im glad you posted. I having real big problems with Flynn a the moment and I not sure if its too do with starting solids or not. So we visited the paed last tuesday and he said flynn was doing well and once he started sitting we could try lowering his dose of losec and to go ahead and start solids. So i tired flynn that day on wholegrain rice that I mademyself. He loved it and had it wed thurs and fri with no problems. So on sat I introduced golden kumera around 11am and that night around 5pm he did his choking breathing thing with alot of wheezy coughing. He had been really grizzly all that afternoon since he got up that morning and really hard to give a bottle too. Kept pulling off the bottle and screaming and sqirming around. We didnt manage to get him into bed untill around 10.30pm that night as he just kept waking up and screaming once placed down, he also coughed and choked all night in his sleep. He Was the same the next day really grizzly and kept pulling off the bottle and sqiring around like hes got colic. Monday was the same so I took him to the drs yesterday and she said just to stick to the rice for a week and then introduce a new one by adding to the rice. He had another choking fit last night where he starts coughing and starts choking and gags and just gets a real blockage in his throat which he then needs help with clearing. That happened at 5.45pm and then for his 7pm feed it ws really hard getting him to take it because of the pulling away. We got him to sleep around 8pm but he just kept waking every 20 mins or so. At his 10.30 feed as soon as I put the teat in his mouth he started coughing really weezy and power chucked. So he didnt even have any of that feed. He was up and down all night so at 4am I tried again with a bottle which the same thing happened. While this is happening he sqirming around throwing his body around in pain. Its worries me that this is getting worse and Im not sure what to do. Should I stop solids untill his reflux is under control. Is it just a coincidence that his reflux has gotten worse around the time he has started solids? Im going to ring and see if I can speack to the paed today about this as he is constantly coughing and he does not have a cold. I really thought we were over the worst. sigh