So Flynn is still waking alot at night and he has been on 20mg of losec for over two months now and on neocate for 6 weeks. During the day it comes and goes and can be during a feed or straight after. At night he still wakes every 1.5 hrs and its not to feed. He sqirms the whole time he is in my arms ...legs pulled up and back arching. And every morning around the same time between 3-4am he wakes up an I can not get him back into bed becasue of the pain. I try and try to bring the wind up...Ive tried gripe water....infacol...colic powder..and merbentyl. He now bring in to bed with me as I was just getting to tired getting up every ten mins too him. So I lie with him next to me with his head propped up on my arm so that when he wakes I can quickly sit up and deal with him and resettle without having to get out of bed. This has been going on for two weeks now and not to sure what to do about it. Is it just really bad wind or is it the reflux? His breathing is terrible aswell. Everyone I meet comments oh he has the snuffles really bad.... he has been like that since two weeks and Im sure it doesnt help his feeding or sleeping. We see the paed again this week but just needed to vent and see if anyone had any miracle suggestions?

No miracles here I'm afraid!
Hope the paed can help though.

Ditto , miss has always been like that so really no help either, slept in lazy boy alot of the time.Hugs its a pain in the bottom i feel like ive lost 15 months of sleep.

My DD was actually worse on a higher dose of losec - the wind issues it caused for her seemed to out weigh the benefits. My GP raised her dose and the paed reduced it back to 10mg and it acutally seemed better on the lower dose. We still had wind problems and sore tummies for ages. Tried a homeopathic product from the states which seemed to help a lot - coliccalm. However, was also the last thing I tried so she was already getting older so can't be sure. Would definitely try it on my next baby if I can persuade my DP to go there again after two refluxers! My DD obviously didn't have such serious reflux though as she was a nightmare at night for the first four months, but then improved.

Have you considered some probiotics and/or some slippery elm?

How long did you try the merbentyl for? Did it help at all? We were told to use3x a day for 3 days then as needed. DD2 farted constantly for the 3 days and after the first day we no longer had the crampy colicky tummy thing which used to start at about midday right through until she went down for the night (9-10pm). I can't have listened to the paed properly as I initially thought he just said as needed so was giving once late afternoon and that had no effect. Doing the 3 day thing did though. We never had those days again.

DD2 was still quite unsettled until around the 4 month mark then I started to see improvements. By 5 months she was heaps improved.

Am wondering if it might be the losec too.

Have you tried massage??? I love u and waterwheel are good ones for wind. Google them for vids etc.

Have you tried a hammock? I really changed my life with DD2 - we didin't get until somewhere in the 3-4 month mark (factory seconds on TM). I'm wondering if it might help with all the waking overnight and you could set up a long piece of string from hammock to your bed and could pull it during the night when bubs wakes. Some babies hate them though so would be good to just try one first.

Hugs

Thanks everyone for your words of wisdom once again. I have not tired probiotics yet or slippery elm but are next on my list.

As for the merbently he was on it exactly the same as you did accept after three days he was to have it late at night every night for an extra three days and then as needed. We have run out of it now so we are back to see paed tomorrow so hopefully will get some more. I didnt see any difference when he was taking though, no extra farting etc but he constantly farts now anyway and lets out a cry each time. Its funny because it didnt help with dd1 either. I have not tried a hammock yet but know someone who will let me borrow one so maybe I should do that.

I dont want to reduce the amount of losec as he still chokes alot now and is inhaling into his lungs.

Thanks again everyone, I have a few new things to try. Fingers crossed one will work

Hope something works for you soon, wizz. I have only just come out of that stage of desperately trying to find something that works so know how you feel. I might be wrong here, but I don't think the dose of losec your DS is on will affect how much he actually refluxes, it will just stop the burn that comes with it. DD on 10mg and 20mg refluxed the same amount, but 10mg seemed to control the acid with not too many side effects, but 20mg just caused us terrible wind/colic issues. Every baby is different though so I hope you find something that works soon. I know a lot of the other babies/children are on higher doses with no problems. Good luck. Solids were our saviour!

Afraid Susie is right - losec won't reduce the spilling/refluxing/choking - just decrease the burn and damage done.

But yes, higher doses can lead to greater side effects, that's why sometimes the dose is split morning and night to reduce side effects.

Solids certainly help some kids - not my guys though. It took William spilling recognisable but curdled weetbix on the Plunket nurse's floor to stop her saying you can't reflux solids...and he was 3.

Lol eleanor re: weetbix on the plunket nurses floor.

I hear what you guys are saying and understand aswell. When he was on 15mg a day his sleeping was alot worse where he was waking every 10 mins at night so Im worried if I lower the dose the burning will come back and make the sleeping issue worse. Ive only now just been able to put him down in a swing without waking for an hour so worried about rocking the boat, But I guess its worth a go to see if it helps with his tummy and who knows he may be better for it. Ill talk it over with my paed tomorrow and see what he says.

Thanks again guys

Wizz, you know him best. If you think he is sleeping better on 20mg than he was on 15mg then it is obviously helping so I would stick with the higher dose. I would consider the coliccalm. Don't know if anyone else has tried it, but it definitely helped my DD a bit. Recommended it to another friend as a "can't hurt why don't you try it" and she said it helped her DD too. I suppose it depends on the degree of the reflux but at least might help with some of the colic symptoms. I really feel for you though Wizz. My two are similar ages to yours and know how hard it is to cope with a nearly two year old on no sleep!

Doesn't sound like the merbentyl will help then. Have you treid Weleda ChamRad 20x - is for teething but is meant to help relax the gut. Worth a try perhaps.

If he likes movement to sleep then hammock is worth a try.

Hi so went back to paed today and asked about his breathing and his snuffles as he sounds like he has a really bad cold. I also told him of his increased waking in the last week and the windyness, He believes it could be allergy based so we went for rasts today for egg soy dairy peanuts and cat and dogs. Im sure it will come back clear but atleast we can rule it out. I also have some merbently so fingers crossed tonight he will be better.

Hi

Susie26 I was just wondering how soon after you lowered the losec dose did you see an improvement with the wind in your dd? Im desperate now as it just seems to be getting worse. After every feed now aswell as during the night. So for the last three days Ive reduced his losec down to 5mg twice a day but I have not seen any improvement yet and not sure how long untill I do see a difference. Its really affecting his sleep and he was a crap sleeper with the reflux before all these tummy issues started. When I mentioned it to my paed he said hmm could be allergy and sent us off for some tests but how can it be allergy when he is on neocate, which is what I asked and he said he could get back ground. Im so confussed. Im also going to try a dr browns bottle to see if that helps.

Hugs wizz, it does your head in trying to figure out whats what,i hope you find some answers soon.

Neocate won't help if he's allergic to something in the air - cats, dogs, dust. pollen etc so testing for that might help untangle where you are at.

Hope something helps!

So would environmental allergies also present as tummy pain and interfer with there sleep? He has been tested for cat and dog only for environmental. And he has been tested for that because of his constant blocked nose and bad breathing. He gets the results tomorrow and we have a dog and a cat who sleeps on our bed. If its not positive god only knows what we do next.

I don't think he would have tummy troubles from environmental allergies. I would go with the testing for food allergies though just in case but I would have expected this to clear on neocate unless he is somehow being exposed through something like cross contamination in his bottles or your hands or something like that - in which case he would have an extremely sensitive allergy and you would expect a positive for it... I don't know it... tricky. Hope you get some answers soon.

I think the tummy troubles must just be from reflux and maybe the losec. I still havent tried probiotics so really need to try them. thanks again everyone

My guess was more along the lines of the way a cold makes reflux worse - loads of mucus to swallow and aggravating the reflux that way?
Just a thought anyway - I'm far from an expert on allergies - my Mastermind specialist topic is reflux