I'd love to get a cgms. Even if it was just a for a few days so the ex could see that just because Phillip goest to bed at 5ish and wakes up at the same number he doens't stay there all night. Maybe then he'd test overnight, but probably not.

Yeah I think that was the biggest 'eye opener' what her Bgs were doing in the night. Regan always has a high reading mid morning I always thought this was from a high carb breakfast but apparently her BGs start climbing from around 3am and never stops until after her morning tea bolus. We are also combining some protein at breakfast time to help with the high.

hi every one, have a look at my page.
I am sure you will agree its a good cause

http://www.fundraiseonline.co.nz/NatashaTaylor/

Tash

Hi all
We are on the countdown to DS pump start - 16/08/10! In some ways we are really ready, but I guess the fear of "change" is beginning to set in! We've been carb counting etc from nearly day one, so that's not a problem. I'm mostly concerned with how it will work with his morning daycare. I don't really want them to have to touch the pump, but they will probably have to!

We have lost our Diabetes Nurse Educator from Queenstown - the nearest now is Invercargill (2.5hrs away) so that's a bit ridiculous! We will spen 2 or 3 nights in Invercargill hospital for the pump start. DS loves the play room etc there so he'll have a great time!

My comment regarding overnight - we are still having to have DS at least 14+ in order for him not to wake low... The pump will hopefully help this!

Just ordered a kids SPI belt to trial - free postage to NZ so I'm extra happy about that!

Calli, we just set a different basel rate for Gabe while he was at kindy so they didn't have to play with the pump. It'll take a few weeks I would imagine to get it right but pretty sure you can set something like this.
And that was with him having morning tea there.

We had a good clinic check up with hba1c at 7.2% (I'm going to get confused with the new system)

Gabriel just wears his pump in his pocket, he was getting frustrated with having a belt/something extra on.

We've just had Gabe on another CGM trialing it for the hospital another blind one, was the Medtronic ipro2. seems to be good. We get the results tomorrow from it.

We also had Gabe in hospital recently with an infection in his eye (on going problem) which they are now doing surgery on which is good and having him on the pump will make that SO much easier.


Things are going well for us. Just delivered the final part of the high health needs funding form to the school to get that off for Gabe for school next year. And his endo and nurse Ed have already had a sit down with MoE and said to expect it and that Gabe will need the full 25 hours a week funded. SO hopefully that goes smoothly, then there is choosing someone, training them in pump use, and all that guff to go.

I've been distancing myself a little of late as I was finding SO much of my life was being taken up with diabetes stuff that it's all I was about, and all I was thinking about, so I've pulled away form here a little, along with stepping down from the diabetes youth committee.

Hope everyone else is going well.

Jane, if you can pm me your address I'll send back that singlet and back pack.

Hi all, I am new to this forum, have used this website many a times for my nursing studies though.

I have a near 7 year old that was diagnosed with type 1 at the age of 14 months. Was very tough times and went through so much drama. We were in and out of hospital for 3 months or so.

She has been on insulin pumps and nearly everything under the sun.
Finding it tougher with her age, as she feels so different to everyone, even though she has had it for so long.

I am so glad I have found this forum. I am truly amazed that there are so many parents going through the same things and I find this support and shared information very helpful

Hi guys, ive been on the board for a while but my 4yr old was diagnosed back on 19th July with type 1 diabetes, although having it myself for 14yrs its a different story having a kid with it...

Calli, if you get Julie from kew hospital (as educator), she is brilliant, ive dealt with her for years as my two younger sisters are also diabetics and now im back with her.. Shes been a great help.

Hope to chat soon to some of you

Hi Cindy
Sorry to hear about your wee one.
Yes we are under Julie's care (no diabetes nurse specialist here in Queenstown anymore), & I agree she is awesome.

Alpha - I agree, sometimes diabetes becomes a bit all consuming & it is good to take a step back & only do the basics.

DS pump is going pretty well, just the usual things like air bubbles in the line & cannulas coming out, but that's to be expected! Averages are slowly coming down, will be interesting to see his HbA1c values over the coming months.

He's moving out of the nursery into pre-school @ daycare on Tuesday, so that's going to be a change. New teachers to train up on blood testing & hypo signs etc, but at least his old teachers are next door if needed.

As he can be a bit hit & miss with whether he eats his morning tea or not, I have opted to give him low carb snacks - great opportunity to give him veges which he loves! Still playing with the carb meal ratios. Basal & ISF seem relatively stable at the moment anyway!

Gosh listen to all our lingo - who would have thought?!

I have a question for those with kids on pumps.

Swimming. How do you deal with swimming?
I'm looking more in terms of keeping the site in and making sure it stays in.
I've found because of the length of time he is in the pool the site comes out, sometimes without us knowing, causing it's own issues.

We've tried tegaderm (Which we use in the shower and is fine for 10-20 min) but that doesn't seem to help as it peels away.

So thoughts/suggestions?

Yes we can take the pump off him I know that but that still leaves a dilemma on what to do about the site.

Rachel swims every day at school and has lessons once a week. We have only ever used Skin Tac to hold a site and they last through baths, showers, swimming, spas and hot pools. I think a lot depends on your child's skin.

Thanks Jane.
What I might also try which I found on another site is getting him to wear a rash suit top in the pool. Someone else mentioned to me that part of the problem can be the water running over the edge of the tape causing it to peel and the top helps prevent this.
Since i know when he's had CGMs in the tape has held for 7 days. I guess it's all just trial and error until you find what works.

Seems Ages since visited this site ... hello to all.

Hayley has had the Pump now for 1 month, and OMG what a transformation!! It was literally a matter of hours and we all notices a huge change in her. No more drastic mood swings, just a very noise happy bubbly 3 year old. THANK YOU THANK YOU THANK YOU.

Apart from the increase in the grocery bill, cos she won't stop eating, life is good.

Had first clinic today since pump-start and here HB1AC's are finally 7.5 (were a tad higher).

Just a few Hypo's to deal with, and the drama of not wanting to eat once we have bolused to contend with now ...

My muffins & Slices are wearing thin, and the kids are asking for something different ... any suggestions? everything I look at appears to be very small portions with high CHO.

Thanks

Pikelets Gabe loves piklets.
And Pop Corn, large portion small CHO

Umm other wise I'm no help Gabe loves crackers with hummas. Carrots and heaps of fruit.

But fixing a hypo is SO much easier. No more convincing him to have a carb snack in the middle of the night when he's low.

We've had a few random highs at the moment, seemingly food related (pizza etc) so we're trying to find time to see the dietitian about high fat/slow release foods.

Along with battling with MoE about full time funding he's got the base 17 hours a week but we're pushing for 27-30 hours a week.

Anyhow.
I was wondering if everyone had forgotten this place.