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#1316123 - 23/09/08 01:04 AM 2 years on......
Shipmate Offline
Obsessed

Registered: 20/06/04
Posts: 10512
Loc: Christchurch
I was just reminiscing about where I was 2 years ago, and I noticed that there was not a lot of posts once things got sorted. And i thought it would be nice to know that eventually most of the reflux babies do get better and things won't be so bad for ever.

Our story briefly, Connor was diagnosed with Reflux at about 4 weeks of age, we saw a fab Paed in Auckland, he even gave us his mobile and would take calls after hours. We were I guess the normal, didn't know what to do for our baby parents, were distressed with how distressed he was, we struggled to get his meds and levels right and when you did it was only for a short time because it would all need adjusting again. We had a swing hanging from our ceiling in the lounge so when things got hard he would go in their and we would take turns swinging him \:\) (ohh the memories) he had 2 hospital admissions where he had to have NG feeding because he got dehydrated and was loosing so much weight. When he was just about one he turned the corner and began to settle down with his food and slowly we were able to reduce his levels and even have periods of no medication. From about 18/20 months Connor has no longer had to have any medication or food modifications and he is 95% of the time really well. He has the odd time that you think ohhhhh its still there (like when he goes to kiss you and you can smell it) But much much better.

Some of the side effects from having moderate reflux baby was that he got held a lot more and relied on us to help him settle and deal with his pain. He didn't have as many opportunities (like his older brother) to learn to self settle, he was a lot more needy and unsettled (all very understandable) Recently we have had the courage to sort out his sleep once and for all and had a 3 day stay at a sleep hospital in Melbourne to get hard on him and his sleeping. We knew he could do it and he has. We also found that his general health has improved too, he was always getting sick, picking up colds, bugs and the last 4/5 months he (touching wood) has been so very well, not a cold/sniffle/bug in site.

I wish you all the strength in the world on your journey with finding out your baby might/has reflux and working out the best path to find help for you all, its very tiring and emotionally draining but you get through it cause you have to. I hope that most of you have a shorter road to travel than ours and those who have children with severe reflux and other complications a big hug to you too \:\) Maybe tomorrow it will be better!!!
_________________________
Mum to Master L (6) Master C (5)

Harry arrived safely 11/1/11 @ 1pm
#4 LMP 11/11/11 due Aug 2012 fingersx

Faith angel 28th Dec 2010


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#1316206 - 23/09/08 07:57 AM Re: 2 years on...... [Re: Shipmate]
Cath510 Offline
Ancient

Registered: 09/05/03
Posts: 3572
Loc: Auckland
Venus thanks so much for taking the time to update, and show us that there is light at the end of the tunnel!

All the best for no. 3!
_________________________
Cath

My three boys:
L 31.12.03
T 21.03.05
F 17.11.07


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#1338867 - 06/10/08 03:28 PM Re: 2 years on...... [Re: Cath510]
Roz Offline
Legend

Registered: 16/08/01
Posts: 4584
Loc: Prebbleton, Christchurch, New ...
thanks
_________________________
Roz (RN), Regional Coordinator pixiedust & Website Manager, director www.cryingoverspiltmilk.co.nz grouphug
Mother of 3 girls, 1992, 1995 and 2000. The youngest had Nissen Fundoplication 19-12-2006 and redo 9/2/2010. On Pantoprazole, but GORD now relatively controlled. jumping Signature updated April 2011 blowkiss

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