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#1017732 - 18/04/08 03:29 PM Advice required...
Roz Offline
Legend

Registered: 16/08/01
Posts: 4584
Loc: Prebbleton, Christchurch, New ...
Originally Posted By: Jazzie
Hi Roz

Dairy free not quite 2 weeks so hoping to see improvement soon (although she does seem to be getting worse in the last 2 days!). Hopefully I haven't inadvertently eaten anything dairy.

Maia was only on 1/2 sachet of Gaviscon at each feed which I was giving during her feed. Is is better to give it to her at the begnning? We have upped her dose to 1 sachet at each feed since yesterday afternoon so I guess it will be a few more days if we see improvement. Is it strange that the instructions say for a baby her weight (over 4.5kg) she should be having 2 sachets??

She is now very very hard to breastfeed, often coming off the breast after a few sucks grizzling? However once she sits up and I'm not trying to feed her she is happy! Is it likely that sucking hurts her? Was back at GPs this morning who could not offer any additional help and unwilling to give other meds. Have been referred to Paed - appointment on Monday so hopefully some further help with managing this! GP was a little concerned that her weight gain is tapering off...poor wee girl.

Anyone with suggestions on how to get her to feed well? She won't take a bottle so I have tried a bit of spoonfeeding but do not have a supply of expressed milk to give her...<sigh>.

http://www.cryingoverspiltmilk.co.nz/MedicalTreatment/GavisconInfant-breastfed.pdf Definitely better to give Gaviscon before a breastfeed as then it is working during the feed and her feeing may improve. 1 sachet is usually enough with breastfeeds and increasing to two sachets may increase the risk of constipation.
We have a forum on Crying Over Spilt Milk for breastfeeding issues moderated by a LLL. Unfortunately our internet provider for the forum has lost their internet connection until probably tomorrow. So give the Gaviscon before the feed and this might improve it anyway. Feed her in as much of an upright position as possible. Sometimes the baby straddling your waist facing you works well. Feed in the bath or shower. Feed standing up swaying. Keep up the good work breastfeeding. Giving breastmilk in another way doesn't tend to improve reflux. Is your letdown fast? What are her bowel motions like?

Will split this off into a new post this time!

_________________________
Roz (RN), Regional Coordinator pixiedust & Website Manager, director www.cryingoverspiltmilk.co.nz grouphug
Mother of 3 girls, 1992, 1995 and 2000. The youngest had Nissen Fundoplication 19-12-2006 and redo 9/2/2010. On Pantoprazole, but GORD now relatively controlled. jumping Signature updated April 2011 blowkiss

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#1019932 - 19/04/08 09:32 PM Re: Advice required... [Re: Roz]
Jazzie Offline
Member

Registered: 16/04/08
Posts: 86
Loc: Auckland
I will try Gaviscon before I breastfeed her but at the moment while she is a bit funny with her feeding I get her on the breast before she is fully awake and find that more successful. Not sure if the Gaviscon has made much difference but she has had a slightly better day today. Her day sleeps are virtually non-existent though which is awfully tiring. Does make me a little anxious that she is not getting sleep during the day. Is this common for reflux babies? Is there a reason why her night sleep is ok and she is not fussy to feed at night?

I have now been in touch with LLL regarding breastfeeding issues and have found them to be wonderful. I find that walking around with her does help keep her latched on but she doesn't really suck. Will have to try the shower. I have a fast letdown on the left breast, slow let down on the right....must be confusing for her. I guess preseverance is the key....but it sure is hard.

BM - she has one every other day now, used to be after every feed. Since starting Gaviscon the BMs can be quite pasty and she always looks like it is more of a struggle to go. Poor wee thing.

Took her back to the GP this week - he was unable to offer any additional help as was not totally convinced she has reflux. Suggested I take her to a Paed for assessment so we are off to that on Monday. Will be interesting what the Paed says....

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#1020374 - 20/04/08 12:16 PM Re: Advice required... [Re: Jazzie]
Dolphin Offline
Carpal tunnel

Registered: 17/09/06
Posts: 2623
Loc: Auckland
It's very common unfortunately to not sleep during the day and drink better at night. The reason is that they are so exhausted by nighttime that they sleep. And they feed well cause there not really awake enough to fight it. \:\( I find one of the first signs for my girls that their reflux is out of control is that they stop sleeping much at daytime and are hard to settle. Also that they stop eating and drinking.

It really does sound like reflux to me, and with her getting quite fussy about drinking it's something that you need to get progressing sooner rather than later. Hopefully the Paed tomorrow will offer some medication, cause it does sound like she needs it. My girls reflux was so out of control that Claire ended up in hospital at 2.5 months with dehydration from refusing to feed, and both girls developed major bottle aversions that took about 6 months to overcome (and we were very lucky to achieve it!) It got to the stage where I had to feed the girls while they were in their beds asleep, cause the minute they waked up they would see the bottle and stop drinking. So the sooner you get the reflux controlled, the better you can avoid this ....

So try things like putting the tv on, or off, blackened room, walking around, etc. Basically babies will sometimes want NO distractions, and other times want LOTS of distractions. I still have to feed my girls with no one else in the room (ie no visitors) cause they barely drink. But at least they drink while up and awake now .... But yeah, they drink HEAPS better while asleep and at night time. I know one mum who bf (I only bottle fed) that would go in before bubs was ready to wake up and gently move them onto the breast, that way they drank better.

Fingers crossed the Paed has some good advice to offer. \:\)
_________________________
Me, DH and twin DD's - 4.5 years old already!
DD1: Undiagnosed metabolic disorder, reflux, food intolerances, asthma
DD2: Mild autism, food intolerances, reflux.


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#1021551 - 21/04/08 10:16 AM Re: Advice required... [Re: Dolphin]
Roz Offline
Legend

Registered: 16/08/01
Posts: 4584
Loc: Prebbleton, Christchurch, New ...
If you use a syringe with only 5ml water/breastmilk mixed with the Gaviscon you may manage to slip it in with her still semiasleep.
Our forum is back at Crying Over Spilt Milk.
She may need some Lactulose whilst on Gaviscon - if they become constipated which it sounds like she is to me, it causes pain and increases the reflux as well sometimes. Talk to the paediatrician or GP about it.
Good luck with the Paediatrician.
_________________________
Roz (RN), Regional Coordinator pixiedust & Website Manager, director www.cryingoverspiltmilk.co.nz grouphug
Mother of 3 girls, 1992, 1995 and 2000. The youngest had Nissen Fundoplication 19-12-2006 and redo 9/2/2010. On Pantoprazole, but GORD now relatively controlled. jumping Signature updated April 2011 blowkiss

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